Adam taking steps with his medical entourage. And there was much rejoicing!
To catch you up a bit...on Monday, the main activities were getting checked in and doing some preliminary assessments by the physical and occupational therapists. They wanted to establish a baseline so that it would be easier to identify whatever changes (good or bad) occurred in his mobility and arm/hand use. We also had a brief visit with Dr. Marks (the movement disorder neurologist) who promised that we'd be seeing him again on Tuesday for the first round of adjustments. The day ended with us taking a few laps around the floor (Adam on his scooter), and watching a movie in the room.
Today (Tuesday) started early with adjustments to the DBS. Dr. Marks wanted to try some more complex adjustments that involve different settings for the arm and leg, and that was the approach that he tried today. The initial results looked promising, and indeed, by mid-day Adam was able to walk around the floor a bit with the physical therapist. The above picture shows part of that walk...with Dr. Marks (directly behind the therapist), MaryAnne (the main DBS adjustment nurse), and others in the fan section! It just happened that they showed up on the floor just as Adam was making his debut stroll and everyone stopped to cheer him on!
The day continued with additional physical therapy activities, preliminary work on the neuropsych evaluation, and some occupational therapy activities. Pretty worn out after all of the excitement, Adam ended the day with another movie. We're all looking forward to seeing what tomorrow will bring.
2 comments:
This is promising!
We're hopeful...he hasn't done anymore walking since then, but they are going to tweak the settings again before we leave and hopefully we'll be able to continue to build on this improvement at home. Current plan is to go home on Saturday.
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