Something about this is familiar...

In what feels a bit familiar, we will be heading out tomorrow to Ft. Worth, TX (are there any other Ft. Worth's?) for a stay in the Epilepsy Monitoring Unit at Cook Children's Medical Center. Those of you who have been with us throughout this journey may recall a similar trek in 2008 to Memphis. If you are joining us fairly recently, you can look back at the posts on this blog to that time period to get a preview of our upcoming week! Although the length of the stay or the specific tests may not be exactly the same, we anticipate a similar experience.

The goals this time are a little bit different...our original trip to Ft. Worth in March was to meet with a movement disorder specialist (a specialized neurologist) to talk about possible directions that might be considered for Adam's dystonia--specifically, Deep Brain Stimulation surgery. However, before we can go further into that possibility, we need to make sure that there is nothing surgical that should be considered as a response to the epilepsy. (That was one of the possibilities being considered and ultimately set aside during our Memphis trip.) So...three years later, different doctors, different city, different hospital...we'll do this again. If it turns out that the feeling is still that surgery is not the path to address the epilepsy, then we will move forward with considering other options (possibly surgical) for the dystonia. We are hopeful that this week will bring new ideas for treatment...but if not, at least a confirmation by new faces that we are doing all we can do at this time.

So...today we finish packing up, tomorrow we drive to Ft. Worth, and Sunday we check in. Stay posted for updates, and feel free to comment freely...it keeps us connected and encouraged!